ABCs of RSD – T is for…

ABCs of RSD – T is for…

T is for…

Thanks to Jaclyn for all her hard work helping with today’s list

Time

Time can unravel quick for us

Time, or rather the distortion thanks to the brain fog and all the other stresses and pain we go through every day that makes keeping track of time near impossible. And thank you Jaclyn for her suggestion that we never have enough…. recovery, time to do tasks, lots of examples and how we lose…

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ABCs of RSD – S is for…

ABCs of RSD – S is for…

S is for…

From our Jaclyn:

Sand

Sand, don’t get your head stuck, or you just might drown in more than misery.

Sand… the sand some people chose to hide their head in instead of really learning about it. Don’t be afraid to research new options and opportunities for ways to approach this and your daily lives. Never know when you might fall on something that will work a lot better.

S is for…

Sleep…

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ABCs of RSD – R is for…

ABCs of RSD – R is for…

R is for…

(From Jaclyn our favorite rambunctious, rioter in the middle if the night.)

Restrictions

Restrictions is so important

Restrictions, necessary evils. We must help control ourselves and our health we have to restrict unhealthy behaviors and working on important things.

R is for…

Resourcefulness, never give up, you become resourceful in finding that if there is a will there is a way. We have strengths…

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ABCs of RSD – Q is for…

ABCs of RSD – Q is for…

Q is for…
Quack

Quack

Quack, also known as the doctor we wish we had never gone to see in the first place. We all end up seeing at least one quack in our lifetime. Let’s hope it was just one for you.

Q is for…
Quarentine

Quarentine

Quarantine, we quarantine ourselves for quiet time. Because getting away from family during get together is sometimes a necessary quarantine because the vibrations of people walking,…

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ABCs of RSD – T is for…

Temperature

T is for…

Thanks to Jaclyn for all her hard work helping with today’s list

Time
Time can unravel quick for us

Time, or rather the distortion thanks to the brain fog and all the other stresses and pain we go through every day that makes keeping track of time near impossible. And thank you Jaclyn for her suggestion that we never have enough…. recovery, time to do tasks, lots of examples and how we lose time

T is for…

Therapy, be it psychological or physical, we all need it sometimes! This can help offer us an outlet for the stress as well as help our bodies counteract the negative side effects from the advancement of the condition.

T is for…

Television
Television can be a great distraction

Television, throw on a movie to distract yourself if the pain gets bad. I highly recommend comedy’s or maybe a good drama to help you get some of the stress you have built up “cried out.”

T is for…

Triumph; something we can all do with time. But it can take a long while to get where we want to be. Don’t give up, just take your time and focus on where you want to be but don’t expect it happen over night.

T is for…

Tough…. we are tough cookies, but sometimes the dough we are made from is not always the best tasting.

T is for…

Tremors, one of the many symptoms that come along with the monster that can be very troubling for us.

T is for…

Temperature
Temperature can be deceiving

Temperature, we are sensitive to any changes in temperature, but at the same time can go through periods where we don’t’ feel any at all. So we need to be very careful not to burn/freeze our affected limbs; also diagnosis is dependent on difference of temperature between the opposing limbs.

T is for…

Talk, we still need to talk and be talked to, which is why the telephone (below) can be such a critical tool for dealing with RSD.

T is for…

Telephone
Telephone can be the lifeline you need when the time is most critical.

Telephone, our lifeline and our opportunity to talk with people who understand what we deal with.

T is for…

Tornado…. how we feel… like life was hit by a tornado and scattered

T is for…

Temptation – the desire to over do it and “live” in prior life. We can’t get back to who we were before, but we can definitely have a life after diagnosis.

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ABCs of RSD – S is for…

Sand

S is for…

From our Jaclyn:

Sand
Sand, don’t get your head stuck, or you just might drown in more than misery.

Sand… the sand some people chose to hide their head in instead of really learning about it. Don’t be afraid to research new options and opportunities for ways to approach this and your daily lives. Never know when you might fall on something that will work a lot better.

S is for…

Sleep deprivation, when Jaclyn gets silly, stupid (hey those are are s’s) and is giggling on the phone keeping me write my ABC’s at 11pm at night! But seriously, we all know that sleep deprivation is a common symptom and can make our moods horrible. Also the lack of sleep can make it easy to gain weight and difficult to feel like we can do our day to day functions.

S is for…

Shoes
Shoes aren’t just to get us from one place to another, but also offer us a great deal of insight.

Shoes, because despite how much pain we are in, we still need to stop and consider what it’s like to walk a mile in someone else’s shoes before we judge how they live their lives. They have a  reason  for how they do things, so don’t assume your path is the only one that works. We have to be flexible in life.

S is for…

Strength, because even though we have a limited amount of strength to get through the day, some how we keep pulling some more out of the bottom less pit of self being which we are. Don’t be afraid to say, “I’m done” though because you need to leave some of those spoons we were talking about for tomorrow’s daily activities too.

S is for…

SNOW
SNOW, in Texas!

Snow, the devil’s spawn. So pretty but so painful.

S is for…

Spoon, and no not the Tick’s calling card. Spoons are a term used by some to put a “quantity” to how much energy someone has through out their day to get stuff done. It might not make a lot of sense, but it works for those who use it so if you are confused, just go with it. You might find it works better than you think.

S is for…

Support, jock strap not included. (Back to that sleep deprivation topic) Because we all need support some times. Don’t be afraid to ask for it because those who love and care about you want to help any way they can. Even if they are far away.

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ABCs of RSD – R is for…

R is for…

(From Jaclyn our favorite rambunctious, rioter in the middle if the night.)

Restrictions
Restrictions is so important

Restrictions, necessary evils. We must help control ourselves and our health we have to restrict unhealthy behaviors and working on important things.

R is for…

Resourcefulness, never give up, you become resourceful in finding that if there is a will there is a way. We have strengths we don’t know we have.

R is for…

Religion
Religion can help you find peace with the pain

Religion, though not all are in need of religion, some find solace and comfort in finding faith in something beyond themselves.

R is for…

Relinquishing control, sometimes you need to. Let go and let things happen they way they are supposed to.

R is for…

Random interjection, because in conversations with us, nothing will come out in logical order. It will probably come out but won’t necessarily make sense to those who are unfamiliar with brain fog.

R is for…

Research
Research

Thanks Andre for:

Research,  because it’s important to research RSD to know and understand how it affects those who suffer from the disease

(And more from Jaclyn)

R is for…

Ready, as in: ready or not here I come!

R is for…

RSD, reflexive sympathetic dystrophy another name for this stupid monster!

RCDOM
RSD/CRPS Doesn’t Own me
RSDSA
RSDSAOrg
RSDHope
RSDHope

RSD Hope

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ABCs of RSD – Q is for…

Question about Medicine

Q is for…

Quack
Quack

Quack, also known as the doctor we wish we had never gone to see in the first place. We all end up seeing at least one quack in our lifetime. Let’s hope it was just one for you.

Q is for…

Quarentine
Quarentine

Quarantine, we quarantine ourselves for quiet time. Because getting away from family during get together is sometimes a necessary quarantine because the vibrations of people walking, the movement of air, and the fear of touch is terrifying with holiday events.

Q is for…

Question
Question

Question, because there are so many questions that still need to be answered. But so many answers that just don’t exist. Be patient with your friends and family as they ask how you’re doing, and be patient with your doctor as he doesn’t know always how to help. This is a learning curve for us all.

Q is for…

Qualification, when it comes to qualification many of our doctors know less than we do. There’s no one particular branch that has a better grasp on it than another. Be patient with your doctors as they look to you for guidance just as much as we turn to them for help.

 

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ABCs of RSD – P is for…

ABCs of RSD – P is for…

P is for…
Perception

Perception changes dependent on what you are looking for. Keep looking up!

Perspective, how we perceive the world and how our body perceives the world are two different things. We see, feel, taste, smell, touch but our body seems to think that which we have around us is 10 times, a hundred times, a thousand times more insane than it really is. Be patient with your body and knows your…

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ABCs of RSD – P is for…

P is for…

Perception
Perception changes dependent on what you are looking for. Keep looking up!

Perspective, how we perceive the world and how our body perceives the world are two different things. We see, feel, taste, smell, touch but our body seems to think that which we have around us is 10 times, a hundred times, a thousand times more insane than it really is. Be patient with your body and knows your limits. If you don’t know them yet, take the time to find when it starts to be too much, not when it is, but when it starts. Because doing this can be a key point of learning to develop when you hit your limit for the day, the hour, the minute.

P is for…

Precious, every moment with or without pain can be precious. We have so many things to give in life: our time, our experience, our love. Don’t stop to think about the little things that are important in life that most people take for granted. Sure you might have been a hiker, or a dancer, or the government officials flying all over the world. But in your head you still have knowledge, your experience; in your heart you have so much love. Everyone around you: family, friends, or fellow RSDers, to them you are precious.

P is for…

Pace, because we must pace ourselves throughout the day. We only have so much energy and if we overdo it in the early morning we can’t get anything done in the afternoon, evening, and maybe even the day after. So take your time. Baby steps are okay, because as long as you get where you need to be, you are rocking it.

P is for…

People
People, can hurt and help, and sometimes at the same time. Be patient with others.

People, they can be our greatest support and our greatest failures. The people around us can help make us get through the day or can make the pain 10 times worse. Emotional stress is it G trigger to make the pain worse, so if you find that something is too much if someone is too much then you need to step away for a while. Well it may hurts and they may not understand ultimately you have to do what is best for you, but if you can try to explain it to him as you just need a little time.

P is for…

Plague, it might sound weird but when I saw the words like in my dictionary, I thought it belonged on here. Not that RSD that can be spread from one person to another. But because it can be its intimidating factor in how people tend to shy away from us because its “sounds contagious” so people step back. And also, ironically one of the plagues, (the bubonic) had vitamin C as a key factor in fighting it off so the correlation just kind of stuck in my head.

P is for…

Progress
Any step in the right direction, even if its after two to three steps backwards is always progress.

Progress, every treatment there’s potential of progress, potential of a period of time where the pain is diminished or SAT farther back in its process. Yes that means you have to go to the hills of the last few weeks to months to years that you just did all over again, but progress means it also has to go back through all that again before it gets any worse. Don’t give up because it didn’t take it all away everything counts.

P is for…

Pride, pride is a very dangerous thing. It can lead us to do things that would hurt us just because we don’t want to depend on someone else. But if that person wants to help you, wants to be there in your life for the rough times, let them have the chance. Don’t let pride drive a wall between you and someone who loves you.

P is for…

Paint, when I saw this I thought of the “Color of the World Orange” event and a video of the young lady wanted to do to for a song that she wrote about RSD. Check it out, I think she did a great job.
[youtube=https://www.youtube.com/watch?v=YVoQczI0gxY]

P is for…

Paradise, the world free of RSD/Casualgia/CRPS, that’s paradise for me. How about you?

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