Medicine Running Out, Funds Low

Question about Medicine

Let’s face it, we are not all blessed with great genetics and many of us need medicine. We aren’t all healthy, even before the CRPS. Some might have heart problems, some might be diabetic, some might have been fighting cancer. But for those few blessed before but are now fighting the many comorbidities of our condition, we have medication that’s required to function what little we can.

Question about Medicine
Question about Medicine

I am blessed with only a traumatic brain injury and heart issues that require medicine. I say blessed because many of our pain brothers and sisters are fighting so many more issues than I. But that doesn’t change the fact without these medicines my life will be directly impacted. I NEED them to function.

Two months ago I became not only broke, but destitute. I cannot afford an apartment let alone my TBI medicine. It is $270 a month with most pharmacies, $220 was the cheapest I found a few years ago from a wonderful mail order place in Iowa, Scott’s Pharmacy. Without this medicine I cannot read and at times I’ll “fade out” because I have mini seizures. Nothing serious to most but could be detrimental if at the wrong time like when driving. A while so far I’ve been lucky, but that won’t be forever.

So in my extremely rough spot I searched for alternative options again; I found Blink. Now, please note, they provide incentives for sharing your code to your friends. They provide money incentives for testimonials for their site. I am doing neither. Because this article is for you. Not for me. Our reason for sharing this information is in hopes that if you’re in dire need and want options that you have a few right here in this article.

Now Scott’s Pharmacy is a bulk ordering company similar to Blink. And I know as a fact they must follow HIPAA guidelines and protect your patient information. But Blink, as I’m about to tell you, while EXCEPTIONALLY less in cost, I’m unsure of their obligations to protect your medicinal privacy as a third party provider who refills the supply your local provider might fill.

So I will err on the side of caution and suggest until you verify your personal information is protected, do not order medicine you might be concerned about someone knowing you are on. I have not yet found any information to say either way. But better extra caution then surprises, right?

Now I have Tramadol as as prescription and I know it’s available through them. But with the new and improved war on chronic pain patients, I do not know if certain opioids are even found in these lists. But again, I’d err on the side of caution and not order anything unless you’re OK with the world knowing you’re on that medicine. (Let’s be honest hackers happen.)

So, my $220 prescription, was less than $28.

Ok stop and read that again. Almost 1/10 of the cost.

My Atenolol for my heart, a $4 a month prescription at Walmart, was less than $8 for a 3 month supply.

Now, they may not work with your local provider, you might have to drive 50-100 miles one way to get the medicine. But even with a truck getting 10 mpg, that’s 20 gallons of gas round trip. If gas is $4 a gallon, that’s $80. If you have a medicine like my Keppra, your STILL saving $100 driving all that way.

But there is options out there. And that’s why we’re sharing about them. Because I was lucky and fell across this and had NOTHING to lose if they stole my $28. But they didn’t. And it’s helped improve my situation, despite losing everything else.

And for those who want to try and help a fellow patient out, blinks referral code appears to be 8 characters, all uppercase, numbers and letters only.

Just saying, $5 for a random patient could be just what they needed. (And again, no not sharing my code.)

Breakthrough in understanding chronic pain could lead to new treatments

Breakthrough in understanding chronic pain could lead to new treatments

Chronic pain, defined as disabling pain that persists despite attempts at treatment and often without obvious cause, has become a serious challenge for health professionals. It is not surprising that someone suffering from this level of pain might become depressed, but most studies consider depression a “comorbidity” – an associated disorder – or suggest that the pain is “somatization” of the…

View On WordPress

No Comments

New Study, Medication Gives Hope to CRPS-RSD Victims – Legal Examiner

Bryan Pope | Attorney • (972) 774-9883
Bryan Pope | Attorney • (972) 774-9883

Axsome Therapeutics, Inc., a biopharmaceutical company dedicated to developing therapies for the treatment of pain and other central nervous system disorders, announced last month that the first patient has been enrolled in the CREATE-1 (CRPS Treatment Evaluation 1) study, a Phase 3 trial evaluating the effectiveness and safety of disodium zoledronate (AXS-02) in the treatment of the pain associated with complex regional pain syndrome (CRPS), also known as reflex sympathetic dystrophy (RSD).

The CREATE-1 study is expected to enroll 190 patients at sites in the U.S., Canada, Europe, and Australia. Eligible patients will be treated with either AXS-02 or a placebo, and the primary objective will be to measure the change in patient-reported pain intensity, measured with the Numerical Rating Scale.

FDA Fast Tracks AXS-02

In March 2015, the U.S. Food and Drug Administration (FDA) granted “Fast Track” designation to AXS-02 for the treatment of the pain associated with CRPS/RSD. AXS-02 is an osteoclast inhibitor being developed as an oral, non-opiod medication to treat the chronic pain. It is an investigational medication not yet approved by the FDA, and its safety and efficacy have not yet been determined. Read more here…

Source: CRPS In the News

(Copied as online data is not static and this should be retained, please know, all right are to the author and her original publication)