Pain Awareness Empowerment

POPF September is pain awareness month

For a healthy person, pain is a warning signal that something is wrong. For a chronic pain patient, it is a state of being. A VERY unpleasant state of being, but one none the less they identify with because they cannot avoid it. They wake up in pain, work all day in pain, sleep in pain if they can sleep at all.

POPF September is pain awareness month
POPF September is pain awareness month

Living in pain is not a small feat for anyone. Existing this world, transgressing the difficulties of being disabled due to an invisible illness or even those with it visible, it is a difficult and awkward time of life. So groups like iPain and US Pain Foundation have a month they celebrate those warriors who keep on fighting, called pain awareness month. That month started yesterday.

We all likely know someone in pain, but may not even know it. So I challenge each person to post something about how you support those with chronic pain, as you would someone with mental illness or diabetes. Help them know that they can come to you if they want to talk about it.

The best thing we can do in our lives is empowering others and empower ourselves. Learning doesn’t have to stop when we graduate high school or college. We have opportunities EVERY DAY. So I challenge you to LEARN about others conditions. You might just save a life knowing more about someone else and what they deal with.

No Comments

ABCs of RSD – T is for…

ABCs of RSD – T is for…

T is for…

Thanks to Jaclyn for all her hard work helping with today’s list

Time

Time can unravel quick for us

Time, or rather the distortion thanks to the brain fog and all the other stresses and pain we go through every day that makes keeping track of time near impossible. And thank you Jaclyn for her suggestion that we never have enough…. recovery, time to do tasks, lots of examples and how we lose…

View On WordPress

No Comments

ABCs of RSD – S is for…

ABCs of RSD – S is for…

S is for…

From our Jaclyn:

Sand

Sand, don’t get your head stuck, or you just might drown in more than misery.

Sand… the sand some people chose to hide their head in instead of really learning about it. Don’t be afraid to research new options and opportunities for ways to approach this and your daily lives. Never know when you might fall on something that will work a lot better.

S is for…

Sleep…

View On WordPress

No Comments

ABCs of RSD – R is for…

ABCs of RSD – R is for…

R is for…

(From Jaclyn our favorite rambunctious, rioter in the middle if the night.)

Restrictions

Restrictions is so important

Restrictions, necessary evils. We must help control ourselves and our health we have to restrict unhealthy behaviors and working on important things.

R is for…

Resourcefulness, never give up, you become resourceful in finding that if there is a will there is a way. We have strengths…

View On WordPress

No Comments

ABCs of RSD – Q is for…

ABCs of RSD – Q is for…

Q is for…
Quack

Quack

Quack, also known as the doctor we wish we had never gone to see in the first place. We all end up seeing at least one quack in our lifetime. Let’s hope it was just one for you.

Q is for…
Quarentine

Quarentine

Quarantine, we quarantine ourselves for quiet time. Because getting away from family during get together is sometimes a necessary quarantine because the vibrations of people walking,…

View On WordPress

No Comments

ABCs of RSD – T is for…

Temperature

T is for…

Thanks to Jaclyn for all her hard work helping with today’s list

Time
Time can unravel quick for us

Time, or rather the distortion thanks to the brain fog and all the other stresses and pain we go through every day that makes keeping track of time near impossible. And thank you Jaclyn for her suggestion that we never have enough…. recovery, time to do tasks, lots of examples and how we lose time

T is for…

Therapy, be it psychological or physical, we all need it sometimes! This can help offer us an outlet for the stress as well as help our bodies counteract the negative side effects from the advancement of the condition.

T is for…

Television
Television can be a great distraction

Television, throw on a movie to distract yourself if the pain gets bad. I highly recommend comedy’s or maybe a good drama to help you get some of the stress you have built up “cried out.”

T is for…

Triumph; something we can all do with time. But it can take a long while to get where we want to be. Don’t give up, just take your time and focus on where you want to be but don’t expect it happen over night.

T is for…

Tough…. we are tough cookies, but sometimes the dough we are made from is not always the best tasting.

T is for…

Tremors, one of the many symptoms that come along with the monster that can be very troubling for us.

T is for…

Temperature
Temperature can be deceiving

Temperature, we are sensitive to any changes in temperature, but at the same time can go through periods where we don’t’ feel any at all. So we need to be very careful not to burn/freeze our affected limbs; also diagnosis is dependent on difference of temperature between the opposing limbs.

T is for…

Talk, we still need to talk and be talked to, which is why the telephone (below) can be such a critical tool for dealing with RSD.

T is for…

Telephone
Telephone can be the lifeline you need when the time is most critical.

Telephone, our lifeline and our opportunity to talk with people who understand what we deal with.

T is for…

Tornado…. how we feel… like life was hit by a tornado and scattered

T is for…

Temptation – the desire to over do it and “live” in prior life. We can’t get back to who we were before, but we can definitely have a life after diagnosis.

No Comments

ABCs of RSD – S is for…

Sand

S is for…

From our Jaclyn:

Sand
Sand, don’t get your head stuck, or you just might drown in more than misery.

Sand… the sand some people chose to hide their head in instead of really learning about it. Don’t be afraid to research new options and opportunities for ways to approach this and your daily lives. Never know when you might fall on something that will work a lot better.

S is for…

Sleep deprivation, when Jaclyn gets silly, stupid (hey those are are s’s) and is giggling on the phone keeping me write my ABC’s at 11pm at night! But seriously, we all know that sleep deprivation is a common symptom and can make our moods horrible. Also the lack of sleep can make it easy to gain weight and difficult to feel like we can do our day to day functions.

S is for…

Shoes
Shoes aren’t just to get us from one place to another, but also offer us a great deal of insight.

Shoes, because despite how much pain we are in, we still need to stop and consider what it’s like to walk a mile in someone else’s shoes before we judge how they live their lives. They have a  reason  for how they do things, so don’t assume your path is the only one that works. We have to be flexible in life.

S is for…

Strength, because even though we have a limited amount of strength to get through the day, some how we keep pulling some more out of the bottom less pit of self being which we are. Don’t be afraid to say, “I’m done” though because you need to leave some of those spoons we were talking about for tomorrow’s daily activities too.

S is for…

SNOW
SNOW, in Texas!

Snow, the devil’s spawn. So pretty but so painful.

S is for…

Spoon, and no not the Tick’s calling card. Spoons are a term used by some to put a “quantity” to how much energy someone has through out their day to get stuff done. It might not make a lot of sense, but it works for those who use it so if you are confused, just go with it. You might find it works better than you think.

S is for…

Support, jock strap not included. (Back to that sleep deprivation topic) Because we all need support some times. Don’t be afraid to ask for it because those who love and care about you want to help any way they can. Even if they are far away.

No Comments

ABCs of RSD – R is for…

R is for…

(From Jaclyn our favorite rambunctious, rioter in the middle if the night.)

Restrictions
Restrictions is so important

Restrictions, necessary evils. We must help control ourselves and our health we have to restrict unhealthy behaviors and working on important things.

R is for…

Resourcefulness, never give up, you become resourceful in finding that if there is a will there is a way. We have strengths we don’t know we have.

R is for…

Religion
Religion can help you find peace with the pain

Religion, though not all are in need of religion, some find solace and comfort in finding faith in something beyond themselves.

R is for…

Relinquishing control, sometimes you need to. Let go and let things happen they way they are supposed to.

R is for…

Random interjection, because in conversations with us, nothing will come out in logical order. It will probably come out but won’t necessarily make sense to those who are unfamiliar with brain fog.

R is for…

Research
Research

Thanks Andre for:

Research,  because it’s important to research RSD to know and understand how it affects those who suffer from the disease

(And more from Jaclyn)

R is for…

Ready, as in: ready or not here I come!

R is for…

RSD, reflexive sympathetic dystrophy another name for this stupid monster!

RCDOM
RSD/CRPS Doesn’t Own me
RSDSA
RSDSAOrg
RSDHope
RSDHope

RSD Hope

No Comments

ABCs of RSD – Q is for…

Question about Medicine

Q is for…

Quack
Quack

Quack, also known as the doctor we wish we had never gone to see in the first place. We all end up seeing at least one quack in our lifetime. Let’s hope it was just one for you.

Q is for…

Quarentine
Quarentine

Quarantine, we quarantine ourselves for quiet time. Because getting away from family during get together is sometimes a necessary quarantine because the vibrations of people walking, the movement of air, and the fear of touch is terrifying with holiday events.

Q is for…

Question
Question

Question, because there are so many questions that still need to be answered. But so many answers that just don’t exist. Be patient with your friends and family as they ask how you’re doing, and be patient with your doctor as he doesn’t know always how to help. This is a learning curve for us all.

Q is for…

Qualification, when it comes to qualification many of our doctors know less than we do. There’s no one particular branch that has a better grasp on it than another. Be patient with your doctors as they look to you for guidance just as much as we turn to them for help.

 

No Comments