FDA launches a new program called BeSafeRx

Online pharmacies BeSafeRx

If it seems too good to be true, it probably is. So why are you ordering your medications online? Well to be frank, many of us can’t afford the medication as it costs in the local store. Either because we are denied insurance due to chronic health conditions, or simply all the treatments are so expensive we don’t have any money left for our every day medication costs. Because of this, the FDA has launched a program called BeSafeRx.

BeSafeRx banner

So many people are being scammed into taking sugar pills that they are paying far, far too much for.  In some cases, even worse.  They are taking discarded or old, out-of-date medication that could kill the user. Now, granted many with RSD might not always see the second one as that terrible of a thing when we are at our worst points. But bad medication is not how any of us want to go.

But consider this. If they are lying about your medicine, what would stop them from using that payment information to steal your identity. When you purchase your medicine, you give a pharmacy your name, your birth date, your address, your credit card. This is more than it takes to steal your identity.

The FDA has created a list of some simple ways to quickly spot a scam:

Online pharmacies BeSafeRxWARNING! Beware of online pharmacies that:

  • Allow you to buy drugs without a prescription from your doctor
  • Offer deep discounts or cheap prices that seem too good to be true
  • Send spam or unsolicited email offering cheap drugs
  • Are located outside of the United States
  • Are not licensed in the United States

These are signs of a fake online pharmacy.
Tips for identifying safe online pharmacies:

  • Always require a doctor’s prescription
  • Provide a physical address and telephone number in the United States
  • Offer a pharmacist to answer your questions
  • Have a license with your state board of pharmacy.
    Find your state’s pharmacy licensing database.

These are signs of a safe, legal online pharmacy.

Check your online pharmacy.

I know price can be a big reason to want to get our medicine through other ways, like online. But in the end we have to put our long term health and safety first.

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Weight Gain or To Not Weight Gain, That is the Question

Many of us would say the second is our ideal intention. But we all find that this can be hard in general, but for some affected by RSD, it becomes almost impossible to avoid. The foundations to weight gain is a balance of calories consumed versus the calories used. Now yes, there are many other factors involved such as metabolism and family genetics that can make this harder to balance into a healthy life style, but I’m going to stick with the basics here.

Recently, I started trying to figure out why when I was diagnosed with RSD I gained so much weight in such a short time, 20 – 25 pounds in a year and a half approximately. Now, I won’t lie I have always been very thin and had to force myself to gain weight at one point, so I’m a fortunate person who is lucky enough to have a very high metabolism to start with.

Right before I reached my peak of 170, I decided I would not gain more than 200 because I knew my family was plagued by heart disease, diabetes, heart attacks, and stroke. So I started looking into tools that helped me track my weight, my calories, and what was going on with my body. That is when I fell across a program available on my android phone called “Calorie Counter.” It allowed me to look up the individual foods, and then enter them in to find out how much I was eating per day. It also allowed me to sync with a website so I could track and work on loosing weight with my friends. Well I wasn’t worried about a group weight loss issue, just wanted to work on my own.

Due to a recent letter sent to one of our more active members, I have decided to offer the site I use to everyone if they would like to try and monitor their calories taken in and weigh should they so desire: http://www.fatsecret.com. To be honest I don’t go to the site very often but if you would like to add me, I use the name “naanad” for just about everything.

My point is, sometimes we can’t get around. Sometimes our bodies hurt. And making sure we are using the calories that we are taking in the same amount and not more than we need for the day, can help us avoid gaining too much weight.

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We’re Back so Share and Make Aware

SAMA

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Share and Make Aware

For some time “Share and Make Aware” has been offline. As that we are now just coming back, we are completely redoing the website. People are welcome to sign up and submit articles, if they so desire. But as that the site is focused on educating not only society as a whole, but also medical professionals. I expect any articles submitted to be fully documented with where information is found and quoted properly, this is including articles by medical journals.

Documentation

Now as that many of these journals contain medical language please, it is understandable if you reword them into more easily understood language. But be sure to document quotes if they are as such, if you are unsure about what classifies as plagiarism, please see this FAQ overview.

Dates

Also as that there are studies being done actively and are being published now, it is highly important that you document the dates of the information. Some information from 2002 may still be valid, but some has been updated. As medical professionals make huge strides in the knowledge about RSD (Reflexive sympathetic dystrophy), we aim to help people have the best and most accurate information.

Publication

All information submitted will be reviewed and as long as information appears to meet these requirements and it is complete it will be published on the website.

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