Medicine Running Out, Funds Low

Question about Medicine

Let’s face it, we are not all blessed with great genetics and many of us need medicine. We aren’t all healthy, even before the CRPS. Some might have heart problems, some might be diabetic, some might have been fighting cancer. But for those few blessed before but are now fighting the many comorbidities of our condition, we have medication that’s required to function what little we can.

Question about Medicine
Question about Medicine

I am blessed with only a traumatic brain injury and heart issues that require medicine. I say blessed because many of our pain brothers and sisters are fighting so many more issues than I. But that doesn’t change the fact without these medicines my life will be directly impacted. I NEED them to function.

Two months ago I became not only broke, but destitute. I cannot afford an apartment let alone my TBI medicine. It is $270 a month with most pharmacies, $220 was the cheapest I found a few years ago from a wonderful mail order place in Iowa, Scott’s Pharmacy. Without this medicine I cannot read and at times I’ll “fade out” because I have mini seizures. Nothing serious to most but could be detrimental if at the wrong time like when driving. A while so far I’ve been lucky, but that won’t be forever.

So in my extremely rough spot I searched for alternative options again; I found Blink. Now, please note, they provide incentives for sharing your code to your friends. They provide money incentives for testimonials for their site. I am doing neither. Because this article is for you. Not for me. Our reason for sharing this information is in hopes that if you’re in dire need and want options that you have a few right here in this article.

Now Scott’s Pharmacy is a bulk ordering company similar to Blink. And I know as a fact they must follow HIPAA guidelines and protect your patient information. But Blink, as I’m about to tell you, while EXCEPTIONALLY less in cost, I’m unsure of their obligations to protect your medicinal privacy as a third party provider who refills the supply your local provider might fill.

So I will err on the side of caution and suggest until you verify your personal information is protected, do not order medicine you might be concerned about someone knowing you are on. I have not yet found any information to say either way. But better extra caution then surprises, right?

Now I have Tramadol as as prescription and I know it’s available through them. But with the new and improved war on chronic pain patients, I do not know if certain opioids are even found in these lists. But again, I’d err on the side of caution and not order anything unless you’re OK with the world knowing you’re on that medicine. (Let’s be honest hackers happen.)

So, my $220 prescription, was less than $28.

Ok stop and read that again. Almost 1/10 of the cost.

My Atenolol for my heart, a $4 a month prescription at Walmart, was less than $8 for a 3 month supply.

Now, they may not work with your local provider, you might have to drive 50-100 miles one way to get the medicine. But even with a truck getting 10 mpg, that’s 20 gallons of gas round trip. If gas is $4 a gallon, that’s $80. If you have a medicine like my Keppra, your STILL saving $100 driving all that way.

But there is options out there. And that’s why we’re sharing about them. Because I was lucky and fell across this and had NOTHING to lose if they stole my $28. But they didn’t. And it’s helped improve my situation, despite losing everything else.

And for those who want to try and help a fellow patient out, blinks referral code appears to be 8 characters, all uppercase, numbers and letters only.

Just saying, $5 for a random patient could be just what they needed. (And again, no not sharing my code.)

Six Keys to a Safe, Allergy-Free Halloween

Have a safe and Happy Halloween

Halloween can be really scary for kids with asthma and allergies — and for their parents — unless they take precautions, an allergist advises.

Have a safe and Happy Halloween
Have a safe and Happy Halloween

“Keep certain common sense tips in mind as you prepare for the holiday,” said Bryan Martin, president of the American College of Allergy, Asthma and Immunology (ACAAI).

“A little preparation can ensure your little ones don’t suffer from allergic reactions or asthma attacks,” Martin said in an ACAAI news release. To help parents prepare, he offered these six tips:

  • Masks can be scary. For kids with asthma, try to choose a costume that doesn’t require a mask. If a child insists on one, it should not be tight-fitting or obstruct breathing.
  • Halloween makeup sometimes causes allergic reactions. Use only high-quality, hypoallergenic makeup, and test it on a small patch of skin in advance to see if it triggers a reaction.
  • Skip the trick-or-treating. Parents of kids with food allergies might want to consider alternatives such as a scavenger hunt, scary movie or Halloween party with safe treats.
  • Be prepared for emergencies. If trick-or-treating is part of the plan, don’t forget to carry a charged cellphone, emergency epinephrine and a bag of safe treats to nibble along the way. Children with asthma should take their medications and carry their inhaler.
  • Check out the treats. Before kids eat anything they get on their Halloween rounds, parents should throw out any candy that has no label or appears unsafe. Instruct children with allergies on which treats are not safe for them to eat. Parents can drop off allergy-free goodies with neighbors in advance so young kids can trick-or-treat safely.
  • Consider offering non-food treats. A growing number of families are trying to raise allergy awareness by placing a teal-painted pumpkin outside that lets trick-or-treaters with food allergies know you have non-food treats for them.

More information

Safe Kids Worldwide has more Halloween safety tips.

SOURCE: American College of Allergy, Asthma and Immunology, news release, Oct. 3, 2016

Robert Preidt (HealthDay News)Last Updated: Oct 10, 2016
Copyright © 2016 HealthDay. All rights reserved.

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Power of Pain: 9 Tips for Cooking with Chronic Pain – Pain News Network

Progress

By: Barby Ingle, Columnist

For those of us living with pain, we wish for a life worth living — one that permits us to enjoy our family and friends.

Preparing and sharing a meal is something I enjoy doing, but pain can make even the simplest cooking tasks more difficult, especially those that affect our hands, fingers, wrists, elbows, and shoulders.

Here are nine tips I’ve learned to make cooking easier:

1. Use pots and pans with two handles

2. Buy a food processor, especially if you have difficulty with manual cooking tasks like chopping, cutting, and slicing.

Choose a food processor that is manageable for you and your physical limitations
Before you buy one, be sure you are able to change the blades easily and remove the plastic bowl and plastic lid from the processor
Consider mini food processors for your needs

3. Use specialty cooking tools such as “Rocker” knives.

The two-handled design adds strength and control to cutting and chopping, while the rocker blade design has the motion built right in.

4. Use a stool to sit on while you prepare and cook food.

Cooking can be a long process, depending on how complicated the meal is you are preparing
When counter work starts to increase your pain or when standing over the stove is wearing you out, be prepared to pull up a stool

5. Crock pot meals

Crock pots are helpful for people with pain to be able to cook nutritious meals, but in less time and more simply.

6. Electric can opener to use on canned food or soups

Soup is simple to prepare and nutritious
Make sure you have canned soups available for when you are having bad pain days or the ingredients to make soup when you don’t feel up to cooking. Soup will warm you and soothe you.
Use a ladle to pour soup into the bowl

7. Double the size of your meals

Create planned leftovers which you can freeze and have available for another day
You will be glad you have nutritious meals in your freezer on days you don’t feel well enough to cook

8. Food Storage

Get food storage containers which are easy for you to open and easy for you to stack
Prepare and store foods which you commonly use and have them in ready-to-eat condition.

9. Organize your kitchen

Get a stove with controls on the front rather than the back
Install cabinet handles which are easy to grasp
Install vertical dividers to store pans and trays so that they are not stacked
Raise the front bottom edge of the refrigerator so it closes automatically
Store frequently used items in cupboards between knee and shoulder height
Store kitchen items near the area they are used
Store spices in a drawer or on the counter rather than in a high cupboard
There are many choices and designs for cooking tools and kitchen aids that can make cooking easier, such as ergonomic, lightweight cooking tools, which have easy grips and non-slip handles.

Spatulas, spoons, ladles, whisks and other cooking tools which feel comfortable in your hand can greatly improve manual dexterity, reduce pain, and compensate for swollen and deformed joints.

What tips have you learned to make cooking easier?

Read more here….

Posted September 18, 2015 copied September 22, 2015
RSD In the News

(Copied as online data is not static and this should be retained, please know, all right are to the author and her original publication)

Questions to ask your doctor

Questions to ask your Doctor

As the Shareandmakeaware.org and RCDOM.org interview comes up we’ve contemplated, what are the important questions patients want the answers to.

So here’s some of the questions we have created and you told me you’d like answered about new treatments along with some of our own:

Effectiveness Questions

Questions to ask your Doctor
Questions to ask your Doctor

How effective is it? Do patients report pain levels decreased to months before, years before? Is it reported to decrease a percentage of the pain patients are experiencing?

How long do the effects last? Days, weeks, months, years? Does it come back suddenly or progressively like how it came on before?

Treatment Info Questions

Does the treatment have a recommended/known time period to complete a successful treatment? 1 visit, staggering visits over several weeks/months, or a battery of treatments slowly weaning off to avoid a “dependency”?

Is there clinical trial information? How many people did the trial, what type of trial was done, who ran it, where are the papers on it published?

What are the side effects? How long do they last?

Why is the doc advocating this treatment (& cross-check answer w physician payment databases)?

How long has this been used on patients, this way? In other ways?

How did this combination come to be used together, is there any other treatments you recommend or don’t recommend trying in combination with this?

Is there a maximum life time dosage that any patient can be exposed to these treatments?

  • Jaclyn Drexel

Potential Downfalls Questions

Contraindications with current medicines/treatments? Are there any conditions/medications that require close monitoring or possible dose tweaking due to the treatment?

  • asked by @NASheridan: & Jaclyn Drexel & Judy Halas

Any major long term problems/side effects from the treatment known at this time?

Thank you to everyone who helped create this list. If more great questions are suggested, we’ll be adding them with credits.

Don’t give up on finding a companion – Gulf Times

You don't have to be alone, you can let a companion in

Many people who want to be in a relationship stop trying to find a companion and lull themselves into a life of quiet desperation and loneliness. The need for companionship is very human, very normal, and very necessary. It gives us emotional balance and lets us enjoy life. It is also in our DNA, so to deny that we need others isn’t facing reality.

Dr Abraham Maslow, who created the hierarchy of needs, listed “belonging” as our next need after food, safety and shelter. For almost everyone, this need pulls at your heart, and even if you have given up in your head, that other organ still yearns for the company of another person.

You don't have to be alone, you can let a companion in
You don’t have to be alone, you can let a companion in

Staying in denial about what you need to be happy, or even to be content, won’t help. Getting past your reluctance to reach out is something that you have to do for yourself, if not completely on your own. There are many people, both professionals and personal, who can help, but you are the one who gets it started and keeps it going.

I totally understand that at times you will feel like you want to give up. You may make yourself believe that though life alone may not be what you want, you will accept it and find a way to deal with and mask the pain. Unfortunately, too often that decision leads to unhealthy choices like self-medication with drugs or alcohol, which will only make you feel worse in the end and may damage your health and, at worst, end your life.

Let’s agree on one basic premise: It is better to be here, even if you are lonely, than not. Now a second premise: A lonely life is better than none at all or one spent in a concentration camp. When you realise that things could be much worse, it will help you appreciate what you have, and that gives you more desire to make it better.
The real truth is that we all have moments of wanting to give up, not just on ourselves but on the possibility of a full life. You need to become unwilling to accept that you are destined for sadness and that there is nothing you can do to change things. That is untrue, plain and simple.

Yes, it is okay for you to have moments, or even some days, where you just want to hide under the covers. That, too, is normal. But you do have to use every ounce of energy you have to pull yourself out of it and start making your life better again. It can only happen if you don’t give up and you continue to look for new and different ways to help you through the process of making your life more enjoyable.

When you feel that you may be resigning yourself to a life you really don’t care for, it is time to reach out. You need to start talking about how you feel.

By getting this kind of emotional support, you are breaking the negative cycle and allowing yourself to move forward again.

One final thought. There are a number of people who, for whatever reason, are better off not being in a relationship. If this describes you, there is no shame in not being part of a couple. You will find love where you can.

– Dr Barton Goldsmith, a psychotherapist in Westlake Village, Calif., is the author of “The Happy Couple: How to Make Happiness a Habit One Little Loving Thing at a Time.” Follow his daily insights on Twitter at @BartonGoldsmith, or e-mail him at Barton@bartongoldsmith.com

Last updated by 11:16 PM 7th February 2015 By Barton Goldsmith/Tribune News Service

Don’t give up on finding a companion – Gulf Times

Source: RSD in the News (Brought to you by Google)

30 Natural Ways to Reduce Pain

Many try pain management and that works for a while. As the disease advances, or the injury worsens, the pain medicine don’t seem to work as well as it once did.

Sometimes it’s not the progression of the disease, but our body own tolerance, to that particular medicine. This leaves many to suffer painfully for hours. Which cause unnecessary stress, fatigue and a decreased ability to function.

There are some things you can do to get some pain relief. I will explain in the following paragraphs.

1- Acupuncture is often used to relieve pain. A chiropractor will insert tiny needles in different pressure point areas of the body. This will stimulate the body, which will cause it to release the pain reducing chemicals serotonin and endorphins. These small needles are also thought to overload the pain center of the brain, which decreases your discomfort.

2- Massage is often used to remove the tension from stiff sore muscles. One type is Ayurveda massage. This therapy is thought to restore positive energy while removing negative energy. These things restore overall balance of the mind, body and soul, which decreases the pain and other symptoms you may be experiencing.

3- Diet Studies show that eating healthy foods reduce pain. When we eat healthy, we replenish essential vitamins and nutrients in our body. This will assist our body in maintaining homeostasis, over all wellness. In addition, we are boosting our immune system and eliminating harmful free radicals.

It’s suggested to eat 21/2 cups of fruits and vegetables a day. We should have 3 cups of dairy products and 3 Ozof whole grains. For meat we should have 5 Oz of either lean meat or fish.

To further reduce pain we need to stay away from central nervous system stimulants processed foods, foods high in saturated and Trans fats. We should also limit the amount of sugar, flour, yeast and carbohydrates we consume each day.

4- Exercise has shown to decrease pain levels. While you exercise your body releases endorphins and other chemicals in your body that helps reduce pain. In addition, exercising stretches muscles which relieves the pressure on muscles and pinched nerves. When you exercise don’t push yourself into doing more than you should. You should warm up before exercising and cool down afterwards.

30 Natural Ways to Reduce Pain
30 Natural Ways to Reduce Pain

5- Yoga has shown to decrease stress and fatigue which will lower your pain level.

6- Relaxation Techniques When we relax, we reduce stress and fatigue which decrease our pain.

7- Meditation This is another pain relief alternative. It empties your mind which reduces the pain signals to the brain.

8- Cognitive Behavior Therapy CBT replace the negative thoughts centered on the pain with more positive ones. It also teaches mindfulness and other pain related techniques.

9- Topical medicines There are several on the market to help alleviate the pain. There are also pain patches that you can apply. Many choose these options because the side effects are minimal

10- Bath time some people take a nice warm relaxing bath. Perhaps add a few candles, and a scented oil to increase the relaxing experience.

11- Warm Moist Heat Some people use warm, moist heat to relieve painful areas. There are several ways to accomplish this. You can use a damp towel that’s been warmed in a microwave. Hot water bottles work well too. There are also rice socks that when warmed releases moist heat. Of course, there is always a heating pad. No matter what you use, be sure that it isn’t hot enough to burn you and the hot water bottle lid is secure.

12Ice Some use ice to reduce swelling, and inflammation. If you use ice, don’t put it directly on the skin and only leave for 20 minutes at a time, with a half hour break in between.

13- Hobby Some find a hobby helps them relax. This helps reduces stress and fatigue, which decreases pain levels. You should choose something that you enjoy doing, and will keeps your mind busy. Perhaps drawing, painting, writing, working out in the garden. Maybe take a ceramic, woodworking, arts and crafts or a dance class. Perhaps you could try sitting down with a good book, or some puzzles.

14. Tennis Balls Some use tennis balls to relieve some of the muscle tension. Take the ball and place it between your sore area and a hard object. Now gently press. Afterwards, use warm, moist heat to relieve the remaining pain.

15- Herbal Alternatives Oils include Balm of Gilead, Boswellia, Castor oil, Eucalyptus, Helichrysum and kava. Devils Claw cream, Skullcap, Feverfew, Cats claw pill, Corydalis powder or oil.

Sometimes we can get the most pain relief from a simple plant. I’ve listed the top shown to reduce pain and inflammation.

  1. Arnica Oil used in sports medicine to reduce muscle pain.
  2. Balm of Gilead reduces pain and inflammation.
  3. Black Pepper reduces pain.
  4. Boswellia reduces pain and inflammation. It helps with arthritis.
  5. CastorOil helps relieve swelling and chronic pain.
  6. Cat’sClaw helps with painful inflammation and with arthritic pain.
  7. Corydalis is a central nervous system depressant.
  8. Devil’s Claw helps relieve muscle and rheumatoid arthritis pain.
  9. Eucalyptus helps with diseases like, osteoarthritis, rheumatism and cancer.
  10. Feverfew reduces inflammation, pain and helps with menstrual cramps.
  11. Helichrysum is an anti-inflammatory analgesic
  12. Jamaican Dogwood relieves migraines it also helps a person sleep by reducing pain, stress tension and fatigue.
  13. Kava it helps reduce pain and helps with insomnia.
  14. Rose it helps reduce pain.
  15. Skullcap relieves pain associated with atherosclerosis, stroke and stroke induced paralysis. It reduces stress, fatigue and insomnia.
  16. Wintergreen rub this in to get relief from sore, stiff muscles. Be sure to dilute according to directions beforehand.

Thank you to ChronicBodyPain.Net for a great article

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Medicine Alert: Fluoroquinolones

Medicines

Due to a recent medical issue encountered by myself I’ve had several discussions with the lovely Lightning Angel of RCDOM about a medication that the doctor put me on. A medication that just made headline news with ABC.

Fluoroquinolones
Fluoroquinolones are intense antibiotics.

Fluoroquinolones are broad-spectrum antibiotics that play an important role in treatment of serious bacterial infections, especially hospital-acquired infections and others in which resistance to older antibacterial classes is suspected. (Copied from Wikipedia) These drugs go by many names, but some of the more common are: Levaquin/levofloxacin, avelox/moxifloxacin, cipro/ciprofloxacin.

The list of potential side effects so long that it takes at least 4 minutes to read them out loud. But one of the most disturbing ones are the rupturing of the tendons that I didn’t learn from the doctor or pharmacy but a fellow admin, RCDOM’s Lightning Angel. Tonight she alerted me to this article, information that the doctors should be aware of, my doctors who know about and recognize my RSD as real, but felt yet further nerve damage wasn’t apparently a big enough concern to outweigh the risks.

The reason they put me on this is I am allergic to two of the optional three medicines to pick from. This is the only other medicine they feel is appropriate to fight this infection. (I’ve had to be on three antibiotics this week at once to get ahead of it.)

Doctor
Communicate with your doctors about your concerns before changing your regimen.

So please take this as a reminder, that keeping your doctors all aware of your treatments, allergies, and keeping one centralized doctor you can trust to KNOW you and your conditions is vital. Our lives are so riddled with delicate balances, don’t risk your health by not communicating with your doctor and don’t risk having a doctor who you can’t trust to listen to your concerned.

If you are on these medicines, please consult your doctor before quitting any medications. Because as with my case, quitting could bring the infection roaring back. So I’m going to wait it out until Monday to determine if I should continue to extend the treatment as I was advised this week by another doctor or if we should move to a more aggressive but safer alternative. But if I have a sudden explosion of symptoms, I will consult convenient care over the weekend for an immediate termination of treatment until I can see my doctor Monday.

Education of the “Healthies”

Education of the "Healthies"

Education of the public may be terrifying because we all have heard the horror stories. People who accuse us of faking for drugs or just over exaggerating. But we continue to run across people who say they want to understand why we hurt and how we hurt. The thing is many of us don’t know how to even describe the severity of what we deal with everyday because it’s been a constant progression of new things added since the beginning.

So what I propose is if someone asks you what exactly you suffer you say that you have a chronic pain condition that leaves you in excruciating pain for 24 hours a day, 7 days a week, 365 days a year. If at this point they seem to think you’re full of it, forget them. But if they seem to be confused or concerned, that is when I explain that the only real sign anyone may have when they first get this, they have excruciating pain that does not fit the injury that they just incurred be it a surgery, a twisted knee, or even just a spider bite.

When I explain it to people I explain the early stages in a way that they can understand. Explaining it like I had an injury that the body that never sent the message to my brain that it healed. So I continue to have the pain so I don’t reinjure the “injury”, the swelling, and a decreased blood flow so that I didn’t bleed out. It was as if my body continued to act to protect me from hurting it any further

Education of the "Healthies"
Could not rotate my feet at the same angle. They felt the same when I wasn’t looking, but this is just one symptom we fight for education of.

As time goes on the pain frequency increases, the severity increases, and the other symptoms continue to advance is well. With continuous swelling and deswelling of the limbs, your muscles start to deteriorate because you can’t bring yourself to use them and when the swelling occurs edema forms causing increased chance of infection. The decreased blood flow causes excruciating pain when the body starts to get blood flow back to a region similar to that when someone who has a leg falling asleep that is just waking up except for us it’s just one capillary or one blood vessel and everything attached to that vessel screams in pain. And since it is not just the entire leg it is not something that feels sane.

Overtime, this repetitive process that happens constantly every month/day/hour starts to wear on persons self esteem, their emotions, their stress level causing them to become depressed, reserved, and not wanting to be in social situations.

Adding in to the factors are the additional symptoms that start to form due to the hypersensitivity of the nerves that failed to transmit this issue in the first place. This makes patients feel even more sensitive to even the movement of air such as a fan, not even blowing on them but in the same room, or the vibrations from the fan, or from riding in a car, or listening to music. Things that were once enjoyable are excruciatingly painful. This is also extremely demoralizing.

You will find the more social or more outgoing patients try to find answers or help find support groups, such as RSD/CRPS Doesn’t Own Me. Those who felt on the edge of society tend to feel more hesitant about talking about their pain even with others who suffer. Slowly making their world smaller and smaller because they feel more and more alone. It is vital for those who are family and friends of patients to reach out to those suffer this and trust in them to tell the truth. Because the pain may seem unreal to those who are healthy, but it seems even more unreal to the patient that this could happen to them.

I hope to inspire everyone to try to keep it simple, try to keep it clear. There is no cure, there is no explanation for the cause, but we hope every day for both. The only thing we can do is make sure that everyone knows the statistics and the defined truths that we do know: that four women to one man have this in the United States, most have genetic ties to Northern Europe, that if caught early there’s a chance for proper treatment and possible remission, but there is no cure, there’s no guarantee it won’t come back, but it is a chance to save another life from dealing with what we deal with everyday. The education of others of the key signs of who is at risk, that there is nothing set in stone, and early recognition of its “ignition.”

Never give up guys, we have so much to give and so much to teach. Not just our friends and family about how vitally important living life to the fullest is, but also educating doctors that sometimes they are not right and sometimes we can also teach them something, and most importantly the strength and conviction of someone who is truly in pain really doesn’t want the drugs for recreational reasons. We just want to have some semblance of our old life back.

Share and make aware! Education is the key!

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Best Kept Secrets of Long Life

Be kind

When we think about the growing old, many thoughts come to mind. But I doubt any of them are that of a woman over 100 years old who is expecting company being found up in a tree outside her house. Or of a man in his early 100’s still chopping wood outside his house at 7 in the morning. Well these are real people, who live NEAR each of them interviewed by the men I will introduce. The regions they live in have a cultural lifestyle that has allowed many of the women and men, live over 100 a years frequently. These people, I think we can all say we consider to have had a very long life.

During the search for longevity of life, two men both ironically sharing the name Dan have formed a hypothesis of how to recreate these societies here, so that we might be able to be like this yet in our life time. The application of this change has started already in the United States. It is called the Blue Zone Project which is currently being applied in 4 cities across Iowa, a state well-known now for its problems with obesity. Just last year the Iowa government launched the initiative  to make them one of the healthiest states in the county. I, Flora DeKock, am a resident of one of these first 4 cities.

[youtube]f5x6OZ9WJt8[/youtube]

Now during the initial meeting about the movement for the cultural change, they covered and discussed much of what they found to be common behaviors and traits found in those who live these long lives. Aptly named as the “Power 9” principles, they are truly powerful motivation for your body’s physical, mental, emotional, and spiritual well-being in their own ways.

  1. Move Naturally
  2. Know Your Purpose
  3. Down Shift
  4. 80% Rule
  5. Plant Slant
  6. Wine @ 5
  7. Right Tribe
  8. Community
  9. Loved Ones First

Each of these have a point and a reason. Now obviously for those who have medical or habitual issues with alcohol, will need to opt out of applying this one to their lives, but as that wine is a known for its antioxidants, they will need to be accessed in other safe ways of those facing this issue.

Now when many speak about their reflexive sympathetic dystrophy, chronic pain, invisible illnesses, and the many other plagues we face because of our declining health, most of us may not feel like looking for that long and happy life. Most of us are looking with a short-term, make it through the day, perspective. And to be frank with our battles, who wouldn’t.  But I propose to each and every person who reads this, ill or healthy, to consider what this group is suggesting. Not because they are selling something, because they aren’t.  But because those who have asked me about my experience with remission and now my second round of RSD, these “Power 9” are almost all of the things I am doing to fight my battle. For example, my weight loss which occurs despite my medications was because I was controlling my calorie intake, very similar to what they suggest. Not for the same reasons as they suggest but their argument is a valid point and works well with mine. Another factor I already applied that allows me to still work, is because I applied the “move naturally” law to my life. Again, not for the same reasons, but still, it works.

Long life for the young at heart
Long life for the young at heart

But I know I want a long life. I want a long, long life with my son and any children he might one day have.  And despite what we all suffer, and I know many are far worse than I, I think we can all say we want to see the children we know and love around us grow up. Be them siblings, our own children, our friends kids. We want that happiness around us on those better days.

So here is my recommendation for all of you, sign up for the daily challenge.  This site’s registration allows you to use your email or your Facebook. Then they will email you with one objective for the day, and if you prefer they can also text you to remind you to do it a couple of times a day. These are simple and fairly easy (for the most part for all of us) objectives. Today mine is to “Admire a piece of art, either in person, in a book, or online.” Once done you get points, then you can comment on it for more points, and then your done for the day. It might seem small, might seem silly, but it’s amazing how accomplished you feel each time you do one of these. One could almost say they feel more “alive” when you have done something so constant  Now the other day I had to do “twists” at the waist, but some of us may not be able to do that anymore. On those days, you can take a “breather” as my mother used to say, or you could find an alternative way to approach it and move an alternative body part that does want to work right. The point of the site is to help people keep active: mentally, socially, physically, and emotionally.  So I welcome you all to come join me in my daily challenges to make our lives even just a little better each day. Here’s to starting the search for a happy, long life for us all.

If you would like to give me some feed back or respond to this if you want me to invite you to the daily challenge website, enter your information below:

[contact-form][contact-field label=’Name’ type=’name’ required=’1’/][contact-field label=’Email’ type=’email’ required=’1’/][contact-field label=’Website’ type=’url’/][contact-field label=’Comment’ type=’textarea’ required=’1’/][/contact-form]

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Weight Gain or To Not Weight Gain, That is the Question

Many of us would say the second is our ideal intention. But we all find that this can be hard in general, but for some affected by RSD, it becomes almost impossible to avoid. The foundations to weight gain is a balance of calories consumed versus the calories used. Now yes, there are many other factors involved such as metabolism and family genetics that can make this harder to balance into a healthy life style, but I’m going to stick with the basics here.

Recently, I started trying to figure out why when I was diagnosed with RSD I gained so much weight in such a short time, 20 – 25 pounds in a year and a half approximately. Now, I won’t lie I have always been very thin and had to force myself to gain weight at one point, so I’m a fortunate person who is lucky enough to have a very high metabolism to start with.

Right before I reached my peak of 170, I decided I would not gain more than 200 because I knew my family was plagued by heart disease, diabetes, heart attacks, and stroke. So I started looking into tools that helped me track my weight, my calories, and what was going on with my body. That is when I fell across a program available on my android phone called “Calorie Counter.” It allowed me to look up the individual foods, and then enter them in to find out how much I was eating per day. It also allowed me to sync with a website so I could track and work on loosing weight with my friends. Well I wasn’t worried about a group weight loss issue, just wanted to work on my own.

Due to a recent letter sent to one of our more active members, I have decided to offer the site I use to everyone if they would like to try and monitor their calories taken in and weigh should they so desire: http://www.fatsecret.com. To be honest I don’t go to the site very often but if you would like to add me, I use the name “naanad” for just about everything.

My point is, sometimes we can’t get around. Sometimes our bodies hurt. And making sure we are using the calories that we are taking in the same amount and not more than we need for the day, can help us avoid gaining too much weight.

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